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The Resource A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period : The DOMAIN Study, by Lori Anne Erickson

A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period : The DOMAIN Study, by Lori Anne Erickson

Creator
Author
Contributor
Summary
Single ventricle heart disease care in the ambulatory setting affects approximately 4,000 infants in the United States annually. Treatment typically involves a three-staged surgical strategy over the first three years of life with parental home monitoring of the infant during the interstage period, which is the time between the first two surgeries. Symptom home monitoring during the interstage period increasingly requires technology to maximize patient outcomes. Mobile health, or mHealth, transfers infant hemodynamic monitoring data captured by parents from the home to designated registered nurse coordinators who monitor the data remotely. Parental mHealth symptom home monitoring adherence is critical to improve morbidity and reduce mortality in infants during this high-risk period. However, rates and determinants of mHealth adherence have yet to be studied. The purpose of this research was to quantify the rate of parental mHealth adherence and to describe the relationship between patient-related, family-related, community-related, and healthcare system-related determinants of parental mHealth adherence for infants with congenital heart disease during the single ventricle interstage period. The pediatric self-management conceptual framework was used with a retrospective, descriptive, correlational research design. De-identified data from 312 infants treated at nine pediatric hospitals between March 2014-September 2019 were included from the Cardiac High Acuity Monitoring Program multi-site registry. This registry was developed in 2014 by Children's Mercy Kansas City and includes patient, family, and medical record data. SPSS AMOS software was used to refine a model to develop a theoretically identified, recursive structural equation model. The rate of parental mHealth adherence-data days was 75.54%. The overall model variance was 24.0%, with good local and global fit. A higher parental age (p<.001) and Medicaid insurance (p=.009) were positively associated with parental mHealth adherence. Higher rates of implementation of oxygen saturation symptom home monitoring were associated with lower clinic visits (p< .001) and increased education levels (p=.001). Adherence to mHealth video use was associated with increased healthcare team driven communications (p=.047). Future research areas proposed from these findings include determining mHealth adherence rates associated with optimized clinical outcomes and ways to reduce parental mHealth non-adherence
Language
eng
Work
Publication
Extent
1 online resource (190 pages)
Note
  • "A dissertation in Nursing."
  • Advisor: Cynthia L. Russell
  • Vita
Contents
  • Introduction
  • Review of literature
  • Methodology
  • Results
  • Discussion
  • Appendix
Instance
Label
A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period : The DOMAIN Study
Title
A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period
Title remainder
The DOMAIN Study
Statement of responsibility
by Lori Anne Erickson
Creator
Contributor
Author
Degree supervisor
Subject
Genre
Language
eng
Summary
Single ventricle heart disease care in the ambulatory setting affects approximately 4,000 infants in the United States annually. Treatment typically involves a three-staged surgical strategy over the first three years of life with parental home monitoring of the infant during the interstage period, which is the time between the first two surgeries. Symptom home monitoring during the interstage period increasingly requires technology to maximize patient outcomes. Mobile health, or mHealth, transfers infant hemodynamic monitoring data captured by parents from the home to designated registered nurse coordinators who monitor the data remotely. Parental mHealth symptom home monitoring adherence is critical to improve morbidity and reduce mortality in infants during this high-risk period. However, rates and determinants of mHealth adherence have yet to be studied. The purpose of this research was to quantify the rate of parental mHealth adherence and to describe the relationship between patient-related, family-related, community-related, and healthcare system-related determinants of parental mHealth adherence for infants with congenital heart disease during the single ventricle interstage period. The pediatric self-management conceptual framework was used with a retrospective, descriptive, correlational research design. De-identified data from 312 infants treated at nine pediatric hospitals between March 2014-September 2019 were included from the Cardiac High Acuity Monitoring Program multi-site registry. This registry was developed in 2014 by Children's Mercy Kansas City and includes patient, family, and medical record data. SPSS AMOS software was used to refine a model to develop a theoretically identified, recursive structural equation model. The rate of parental mHealth adherence-data days was 75.54%. The overall model variance was 24.0%, with good local and global fit. A higher parental age (p<.001) and Medicaid insurance (p=.009) were positively associated with parental mHealth adherence. Higher rates of implementation of oxygen saturation symptom home monitoring were associated with lower clinic visits (p< .001) and increased education levels (p=.001). Adherence to mHealth video use was associated with increased healthcare team driven communications (p=.047). Future research areas proposed from these findings include determining mHealth adherence rates associated with optimized clinical outcomes and ways to reduce parental mHealth non-adherence
Cataloging source
UMK
http://library.link/vocab/creatorDate
1982-
http://library.link/vocab/creatorName
Erickson, Lori Anne
Degree
Ph.D.
Dissertation note
(School of Nursing and Health Studies).
Dissertation year
2020.
Granting institution
University of Missouri-Kansas City,
Illustrations
illustrations
Index
no index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
  • theses
http://library.link/vocab/relatedWorkOrContributorName
Russell, Cynthia L.
http://library.link/vocab/subjectName
  • Wireless communication systems in medical care
  • Congenital heart disease in children
  • Sick children
  • Telemedicine
  • Heart Diseases
  • Medication Adherence
Label
A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period : The DOMAIN Study, by Lori Anne Erickson
Instantiates
Publication
Copyright
Note
  • "A dissertation in Nursing."
  • Advisor: Cynthia L. Russell
  • Vita
Antecedent source
not applicable
Bibliography note
Includes bibliographical references (pages 166-188)
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
black and white
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Introduction -- Review of literature -- Methodology -- Results -- Discussion -- Appendix
Control code
1157287339
Dimensions
unknown
Extent
1 online resource (190 pages)
File format
one file format
Form of item
online
Level of compression
mixed
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Quality assurance targets
not applicable
Specific material designation
remote
System control number
(OCoLC)1157287339
System details
  • The full text of the dissertation is available as an Adobe Acrobat .pdf file; Adobe Acrobat Reader required to view the file
  • Mode of access: World Wide Web
Label
A Descriptive Correlational Study of Rate and Determinants of Parental mHealth Adherence to Symptom Home Monitoring for Infants with Congenital Heart Disease during the Single Ventricle Interstage Period : The DOMAIN Study, by Lori Anne Erickson
Publication
Copyright
Note
  • "A dissertation in Nursing."
  • Advisor: Cynthia L. Russell
  • Vita
Antecedent source
not applicable
Bibliography note
Includes bibliographical references (pages 166-188)
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
black and white
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Introduction -- Review of literature -- Methodology -- Results -- Discussion -- Appendix
Control code
1157287339
Dimensions
unknown
Extent
1 online resource (190 pages)
File format
one file format
Form of item
online
Level of compression
mixed
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Quality assurance targets
not applicable
Specific material designation
remote
System control number
(OCoLC)1157287339
System details
  • The full text of the dissertation is available as an Adobe Acrobat .pdf file; Adobe Acrobat Reader required to view the file
  • Mode of access: World Wide Web

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