Coverart for item
The Resource Assessing the impact of applications of digital health records on Alzheimer's disease research : workshop summary, Lisa Bain and Sheena Posey Norris, rapporteurs ; Forum on Neuroscience and Nervous System Disorders, Board on Health Sciences Policy, Institute of Medicine, the National Academies of Sciences, Engineering, Medicine

Assessing the impact of applications of digital health records on Alzheimer's disease research : workshop summary, Lisa Bain and Sheena Posey Norris, rapporteurs ; Forum on Neuroscience and Nervous System Disorders, Board on Health Sciences Policy, Institute of Medicine, the National Academies of Sciences, Engineering, Medicine

Label
Assessing the impact of applications of digital health records on Alzheimer's disease research : workshop summary
Title
Assessing the impact of applications of digital health records on Alzheimer's disease research
Title remainder
workshop summary
Statement of responsibility
Lisa Bain and Sheena Posey Norris, rapporteurs ; Forum on Neuroscience and Nervous System Disorders, Board on Health Sciences Policy, Institute of Medicine, the National Academies of Sciences, Engineering, Medicine
Creator
Contributor
Subject
Genre
Language
eng
Summary
"Health information technology is providing patients, clinicians, and researchers with access to data that will enable novel approaches to science and medicine. Digital health records (DHRs) are capable of being shared across different health care settings for the examination of possible trends and long-term changes in a patient's disease progression or status as well as the effectiveness of the health care delivery system. While prevalence of paper records remains high, there has been a rapid trend toward the digitalization of medical and health records in many countries. DHRs are widely viewed as essential for improving health, reducing medical errors, and lowering costs. However, given that these databases have the potential to house the complete medical and health information of individuals, the potential misuse, de-identification or breaching of this data may have serious implications. On July 20, 2015, the Institute of Medicine's Forum on Neuroscience and Nervous System Disorders held a public session at the 2015 Alzheimer's Association International Conference to assess the impact of DHRs on Alzheimer's disease (AD) research. An estimated 46.8 million people worldwide are currently living with dementia, and the prevalence is expected to double every year for the next 20 years. Given the few therapies currently available to treat the symptoms of AD, compared to other central nervous system disorders, participants explored how DHRs may be used to help improve clinical trial design and methodology for AD research. This report summarizes the presentations and discussions from this workshop"--Publisher's description
Cataloging source
N$T
http://library.link/vocab/creatorName
Bain, Lisa J
Dewey number
618.97/683
Illustrations
illustrations
Index
no index present
LC call number
RC523
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
WT 155
http://bibfra.me/vocab/relation/rapporteur
  • ONV1dHp5J00
  • eHHoKvOxA1s
http://library.link/vocab/relatedWorkOrContributorDate
2015
http://library.link/vocab/relatedWorkOrContributorName
  • Norris, Sheena M. Posey
  • Institute of Medicine (U.S.)
  • Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research (Workshop)
http://library.link/vocab/subjectName
  • Alzheimer's disease
  • Medical records
  • Clinical trials
  • Alzheimer Disease
  • Electronic Health Records
  • Clinical Trials as Topic
  • Research Design
Label
Assessing the impact of applications of digital health records on Alzheimer's disease research : workshop summary, Lisa Bain and Sheena Posey Norris, rapporteurs ; Forum on Neuroscience and Nervous System Disorders, Board on Health Sciences Policy, Institute of Medicine, the National Academies of Sciences, Engineering, Medicine
Instantiates
Publication
Copyright
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Contents
Introduction and overview -- Building infrastructure to enable data sharing and management -- Ethical, legal, and societal considerations -- Potential next steps
Control code
945552543
Extent
1 online resource (xi, 34 pages)
Form of item
online
Isbn
9780309379731
Media category
  • computer
  • still image
Media MARC source
  • rdamedia
  • rdacontent
Media type code
  • c
  • sti
Other physical details
illustrations (chiefly color)
Specific material designation
remote
System control number
(OCoLC)945552543
Label
Assessing the impact of applications of digital health records on Alzheimer's disease research : workshop summary, Lisa Bain and Sheena Posey Norris, rapporteurs ; Forum on Neuroscience and Nervous System Disorders, Board on Health Sciences Policy, Institute of Medicine, the National Academies of Sciences, Engineering, Medicine
Publication
Copyright
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Contents
Introduction and overview -- Building infrastructure to enable data sharing and management -- Ethical, legal, and societal considerations -- Potential next steps
Control code
945552543
Extent
1 online resource (xi, 34 pages)
Form of item
online
Isbn
9780309379731
Media category
  • computer
  • still image
Media MARC source
  • rdamedia
  • rdacontent
Media type code
  • c
  • sti
Other physical details
illustrations (chiefly color)
Specific material designation
remote
System control number
(OCoLC)945552543

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