The Resource Assessment tools for palliative care, prepared for Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by Johns Hopkins University Evidence-based Practice Center ; investigators, Rebecca Aslakson, Sydney M. Dy, Renee F. Wilson, Julie M. Waldfogel, Allen Zhang, Sarina R. Isenberg, Alex Blair, Joshua Sixon, Karen A. Robinson

Assessment tools for palliative care, prepared for Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by Johns Hopkins University Evidence-based Practice Center ; investigators, Rebecca Aslakson, Sydney M. Dy, Renee F. Wilson, Julie M. Waldfogel, Allen Zhang, Sarina R. Isenberg, Alex Blair, Joshua Sixon, Karen A. Robinson

Label
Assessment tools for palliative care
Title
Assessment tools for palliative care
Statement of responsibility
prepared for Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by Johns Hopkins University Evidence-based Practice Center ; investigators, Rebecca Aslakson, Sydney M. Dy, Renee F. Wilson, Julie M. Waldfogel, Allen Zhang, Sarina R. Isenberg, Alex Blair, Joshua Sixon, Karen A. Robinson
Creator
Contributor
Author
Subject
Language
eng
Summary
OBJECTIVES: To (1) provide an overview of palliative care assessment tools designed to be completed by or with patients or caregivers, including which tools have been applied to clinical care, as quality indicators, or in evaluations of interventions, and (2) identify needs for future palliative care assessment tool development and evaluation. METHODS: First, we engaged Key Informants representing both patient/caregiver and provider/researcher perspectives to help guide the project. We then sought systematic reviews of palliative care assessment tools and applications of tools through searches of PubMed, CINAHL, Cochrane, PsycINFO and PsycTESTS from January 1, 2007 to August 29, 2016. We conducted supplemental searches of information on palliative care tools, including comprehensive reviews published prior to our date limitation, Web sites, and a targeted search for primary articles to identify tools where no recent high-quality systematic review was identified. We organized tools by the eight domains (subdomains) from the National Consensus Project Clinical Practice Guidelines for Palliative Care: structure and process, physical, psychological and psychiatric, social (caregiver), spiritual and religious, cultural, care at the end of life (bereavement), ethical and legal; as well as a ninth domain for multidimensional tools (quality of life and patient experience). RESULTS: We included 10 systematic reviews of palliative care assessment tools (7 addressing different domains and 3 addressing applications of tools). We identified 152 tools (97 from systematic reviews and 55 from supplemental sources). Key gaps included: no identified systematic review for the subdomain of pain and a paucity of tools to assess structure and process, cultural, ethical and legal domains, and patient-reported experience. Information on internal consistency, reliability, construct validity, and usability was available for many tools, but few studies evaluated responsiveness (sensitivity to change). Only six studies evaluated the use of assessment tools in clinical practice, and we identified only one quality indicator with a specified assessment tool. Twenty-three different palliative care assessment tools were used in 43 intervention studies. CONCLUSIONS: We identified more than 150 assessment tools addressing most domains of palliative care, but few tools addressed the spiritual, structure and process, ethical and legal, or cultural domains, or the patient-reported experience subdomain. While some data on the psychometric properties of tools exist, the responsiveness of different tools to change has largely not been evaluated. Future research should focus on: (1) developing or testing tools in palliative care populations for domains with few or no tools, (2) evaluating responsiveness of tools for all domains, and (3) further studying the use of palliative care tools in clinical care and as quality indicators
Member of
Cataloging source
NLM
http://library.link/vocab/creatorName
Aslakson, Rebecca
Funding information
Prepared for: Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by: Johns Hopkins University Evidence-based Practice Center
Illustrations
illustrations
Index
no index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
WB 310
http://library.link/vocab/relatedWorkOrContributorName
  • United States
  • Johns Hopkins University
Series statement
  • Technical brief
  • AHRQ publication
Series volume
  • number 30
  • no. 17-EHC007-EF
http://library.link/vocab/subjectName
  • Palliative Care
  • Needs Assessment
  • Symptom Assessment
  • Psychometrics
  • Pain Measurement
Label
Assessment tools for palliative care, prepared for Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by Johns Hopkins University Evidence-based Practice Center ; investigators, Rebecca Aslakson, Sydney M. Dy, Renee F. Wilson, Julie M. Waldfogel, Allen Zhang, Sarina R. Isenberg, Alex Blair, Joshua Sixon, Karen A. Robinson
Instantiates
Publication
Note
"May 2017."
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
1004824387
Extent
1 online resource (various pagings)
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Specific material designation
remote
System control number
(OCoLC)1004824387
Label
Assessment tools for palliative care, prepared for Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services ; prepared by Johns Hopkins University Evidence-based Practice Center ; investigators, Rebecca Aslakson, Sydney M. Dy, Renee F. Wilson, Julie M. Waldfogel, Allen Zhang, Sarina R. Isenberg, Alex Blair, Joshua Sixon, Karen A. Robinson
Publication
Note
"May 2017."
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
1004824387
Extent
1 online resource (various pagings)
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Specific material designation
remote
System control number
(OCoLC)1004824387

Library Locations

  • Ellis LibraryBorrow it
    1020 Lowry Street, Columbia, MO, 65201, US
    38.944491 -92.326012
  • Engineering Library & Technology CommonsBorrow it
    W2001 Lafferre Hall, Columbia, MO, 65211, US
    38.946102 -92.330125
  • Fisher Delta Research CenterBorrow it
    2-64 Agricultural Bldg, Columbia, MO, 65201, US
    38.958397 -92.303491
  • Geological Sciences LibraryBorrow it
    201 Geological Sciences, Columbia, MO, 65211, US
    38.947375 -92.329062
  • J. Otto Lottes Health Sciences LibraryBorrow it
    1 Hospital Dr, Columbia, MO, 65201, US
    38.939544 -92.328377
  • Journalism LibraryBorrow it
    102 Reynolds Jrnlism Institute, Columbia, MO, 65211, US
    38.947290 -92.328025
  • Mathematical Sciences LibraryBorrow it
    104 Ellis Library, Columbia, MO, 65201, US
    38.944377 -92.326537
  • University ArchivesBorrow it
    Columbia, MO, 65201, US
  • University Archives McAlester AnnexBorrow it
    703 Lewis Hall, Columbia, MO, 65211, US
    38.934630 -92.342290
  • University of Missouri Libraries DepositoryBorrow it
    2908 Lemone Blvd, Columbia, MO, 65211, US
    38.919360 -92.291620
  • Zalk Veterinary Medical LibraryBorrow it
    Veterinary Medicine West, Columbia, MO, 65211, US
    38.941099 -92.317911
Processing Feedback ...