The Resource Relevance of health literacy to precision medicine : proceedings of a workshop, Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine

Relevance of health literacy to precision medicine : proceedings of a workshop, Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine

Label
Relevance of health literacy to precision medicine : proceedings of a workshop
Title
Relevance of health literacy to precision medicine
Title remainder
proceedings of a workshop
Statement of responsibility
Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine
Creator
Contributor
Sponsoring body
Subject
Genre
Language
eng
Summary
"On January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers, providers, and patients work together to develop individualized care. Part of this effort included the creation of a national, large-scale research participant group, or cohort. The PMI Cohort Program is aimed at extending precision medicine to many diseases, including both rare and common diseases such as diabetes, heart disease, Alzheimers disease, obesity, and mental illnesses such as depression, bipolar disorder, and schizophrenia, by building a national research cohort of 1 million or more U.S. participants. An important challenge to assembling the PMI Cohort will be to reach individuals who are socioeconomically disadvantaged. Individuals who are socioeconomically disadvantaged have lower health literacy; often belong to racial, ethnic, and minority communities; and are often less likely to participate in research studies and biorepositories. To explore possible strategies and messaging designs, the Roundtable on Health Literacy formed an ad hoc committee charged with planning and conducting a 1-day public workshop on the intersection of health literacy and precision medicine. The workshop participants discussed a variety of topics including an overview of precision medicine and its potential, the relevance of health literacy to the success of precision medicine efforts, and perspectives and understanding of different groups, such as health care providers, consumers, and insurers. This publication summarizes the presentations and discussions from the workshop"--Publisher's description
Cataloging source
CUS
http://library.link/vocab/creatorName
Alper, Joe
Illustrations
illustrations
Index
no index present
LC call number
RA773.74
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
WB 102
http://bibfra.me/vocab/relation/rapporteur
ayqgXoM6A6k
http://library.link/vocab/relatedWorkOrContributorDate
2016
http://library.link/vocab/relatedWorkOrContributorName
  • National Academies of Sciences, Engineering, and Medicine (U.S.)
  • Relevance of Health Literacy to Precision Medicine (Workshop)
http://library.link/vocab/subjectName
  • Precision Medicine Initiative
  • Health literacy
  • Personalized medicine
  • Precision Medicine Initiative
  • Health Literacy
  • Precision Medicine
  • Health Communication
  • Cohort Studies
  • United States
  • United States
Label
Relevance of health literacy to precision medicine : proceedings of a workshop, Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine
Instantiates
Publication
Copyright
Bibliography note
Includes bibliographical references (pages 83-87)
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
  • text
  • still image
Content type code
  • txt
  • sti
Content type MARC source
  • rdacontent
  • rdacontent
Contents
Introduction -- Genetic literacy -- The intersection of health literacy and precision medicine -- Health literacy in precision medicine research -- Communicating risk and uncertainty in the clinical setting -- Communicating with the public -- Reflections on the day -- References -- Appendix A: Workshop agenda -- Appendix B: Biographical sketches of workshop speakers, moderators, and reactors
Control code
962454795
Extent
1 online resource (xx, 104 pages)
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other control number
10.17226/23592
Other physical details
color illustrations
Specific material designation
remote
System control number
(OCoLC)962454795
Label
Relevance of health literacy to precision medicine : proceedings of a workshop, Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine
Publication
Copyright
Bibliography note
Includes bibliographical references (pages 83-87)
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
  • text
  • still image
Content type code
  • txt
  • sti
Content type MARC source
  • rdacontent
  • rdacontent
Contents
Introduction -- Genetic literacy -- The intersection of health literacy and precision medicine -- Health literacy in precision medicine research -- Communicating risk and uncertainty in the clinical setting -- Communicating with the public -- Reflections on the day -- References -- Appendix A: Workshop agenda -- Appendix B: Biographical sketches of workshop speakers, moderators, and reactors
Control code
962454795
Extent
1 online resource (xx, 104 pages)
Form of item
online
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other control number
10.17226/23592
Other physical details
color illustrations
Specific material designation
remote
System control number
(OCoLC)962454795

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