The Resource Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
Resource Information
The item Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource) represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of Missouri Libraries.This item is available to borrow from 1 library branch.
Resource Information
The item Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource) represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of Missouri Libraries.
This item is available to borrow from 1 library branch.
- Summary
- The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision info... Cf.: http://dx.doi.org/10.3886/ICPSR02957
- Language
- eng
- Edition
- ICPSR version.
- Note
- Title from ICPSR DDI metadata of 2004-10-30
- Contents
-
- Part 1: Physiologic Measurements Data, SUPPORT Phase I; Part 2: Patient Symptoms Data, SUPPORT Phase I; Part 3: Summary Data, SUPPORT Phase I; Part 4: Physiologic Measurements Data, SUPPORT Phase II; Part 5: Patient Symptoms Data, SUPPORT Phase II; Part 6: Summary Data, SUPPORT Phase II; Part 7: Physiologic Measurements Data, HELP; Part 8: Summary Data, HELP; Part 9: Physiology Data, SUPPORT Phases I and II and HELP; Part 10: Key Common Analytical Variables, SUPPORT Phases I and IIand HELP; Part 11: SAS Transport File for Parts 1, 2 and 3; Part 12: SAS Transport File for Parts 4, 5, and 6; Part 13: SAS Transport File for Parts 7 and 8; Part 14: SAS Transport File for Parts 9 and 10; Part 15: SAS Transport File for Input Control Datasets; Part 16: Summary and Codebook for All Parts; Part 17: Input Forms and Questionnaires for Phase I of SUPPORTStudy; Part 18: Input Forms and Questionnaires for Phase II of SUPPORTand HELP Studies
- Label
- Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997
- Title
- Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997
- Statement of responsibility
- William Knaus, Joanne Lynn
- Language
- eng
- Summary
- The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision info... Cf.: http://dx.doi.org/10.3886/ICPSR02957
- Additional physical form
- Also available as downloadable files.
- Cataloging source
- ICPSR
- Characteristic
- combination
- Date time place
- Start: 1989; and end: 1997
- Funding information
- Robert Wood Johnson Foundation.
- Geographic coverage
- United States.
- Government publication
- unknown if item is government publication
- http://library.link/vocab/relatedWorkOrContributorName
-
- Knaus, William J
- Lynn, Joanne
- Inter-university Consortium for Political and Social Research
- Series statement
- ICPSR
- Series volume
- 2957
- http://library.link/vocab/subjectName
-
- Attitudes toward death
- Decision making
- Dying
- Informed consent
- Intervention
- Intervention strategies
- Patient care
- Right to die
- Terminal care
- Terminal illnesses
- Treatment
- Target audience
- specialized
- Label
- Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
- Note
- Title from ICPSR DDI metadata of 2004-10-30
- Antecedent source
- unknown
- Color
- mixed
- Contents
- Part 1: Physiologic Measurements Data, SUPPORT Phase I; Part 2: Patient Symptoms Data, SUPPORT Phase I; Part 3: Summary Data, SUPPORT Phase I; Part 4: Physiologic Measurements Data, SUPPORT Phase II; Part 5: Patient Symptoms Data, SUPPORT Phase II; Part 6: Summary Data, SUPPORT Phase II; Part 7: Physiologic Measurements Data, HELP; Part 8: Summary Data, HELP; Part 9: Physiology Data, SUPPORT Phases I and II and HELP; Part 10: Key Common Analytical Variables, SUPPORT Phases I and IIand HELP; Part 11: SAS Transport File for Parts 1, 2 and 3; Part 12: SAS Transport File for Parts 4, 5, and 6; Part 13: SAS Transport File for Parts 7 and 8; Part 14: SAS Transport File for Parts 9 and 10; Part 15: SAS Transport File for Input Control Datasets; Part 16: Summary and Codebook for All Parts; Part 17: Input Forms and Questionnaires for Phase I of SUPPORTStudy; Part 18: Input Forms and Questionnaires for Phase II of SUPPORTand HELP Studies
- Control code
- MIU01000000000000005047289
- Dimensions
- unknown
- Edition
- ICPSR version.
- File format
- multiple file formats
- Governing access note
- AVAILABLE. This study is freely available to ICPSR member institutions
- Level of compression
- unknown
- Note
- MU: Records downloaded from ICPSR site on Dec. 8, 2009.
- Quality assurance targets
- unknown
- Reformatting quality
- unknown
- Specific material designation
- remote
- System control number
-
- (MiAaI)ICPSR02957
- (OCoLC)ocm61153177
- (MiAaI)ICPSR02957
- (OCoLC)ocm61153177
- System details
- Mode of access: Internet
- Type of computer file
- 10 data files + machine-readable documentation (text and PDF)
- Label
- Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
- Note
- Title from ICPSR DDI metadata of 2004-10-30
- Antecedent source
- unknown
- Color
- mixed
- Contents
- Part 1: Physiologic Measurements Data, SUPPORT Phase I; Part 2: Patient Symptoms Data, SUPPORT Phase I; Part 3: Summary Data, SUPPORT Phase I; Part 4: Physiologic Measurements Data, SUPPORT Phase II; Part 5: Patient Symptoms Data, SUPPORT Phase II; Part 6: Summary Data, SUPPORT Phase II; Part 7: Physiologic Measurements Data, HELP; Part 8: Summary Data, HELP; Part 9: Physiology Data, SUPPORT Phases I and II and HELP; Part 10: Key Common Analytical Variables, SUPPORT Phases I and IIand HELP; Part 11: SAS Transport File for Parts 1, 2 and 3; Part 12: SAS Transport File for Parts 4, 5, and 6; Part 13: SAS Transport File for Parts 7 and 8; Part 14: SAS Transport File for Parts 9 and 10; Part 15: SAS Transport File for Input Control Datasets; Part 16: Summary and Codebook for All Parts; Part 17: Input Forms and Questionnaires for Phase I of SUPPORTStudy; Part 18: Input Forms and Questionnaires for Phase II of SUPPORTand HELP Studies
- Control code
- MIU01000000000000005047289
- Dimensions
- unknown
- Edition
- ICPSR version.
- File format
- multiple file formats
- Governing access note
- AVAILABLE. This study is freely available to ICPSR member institutions
- Level of compression
- unknown
- Note
- MU: Records downloaded from ICPSR site on Dec. 8, 2009.
- Quality assurance targets
- unknown
- Reformatting quality
- unknown
- Specific material designation
- remote
- System control number
-
- (MiAaI)ICPSR02957
- (OCoLC)ocm61153177
- (MiAaI)ICPSR02957
- (OCoLC)ocm61153177
- System details
- Mode of access: Internet
- Type of computer file
- 10 data files + machine-readable documentation (text and PDF)
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<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.library.missouri.edu/portal/Study-to-Understand-Prognoses-and-Preferences-for/PHO4HpLitwc/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.library.missouri.edu/portal/Study-to-Understand-Prognoses-and-Preferences-for/PHO4HpLitwc/">Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.library.missouri.edu/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.library.missouri.edu/">University of Missouri Libraries</a></span></span></span></span></div>
