Coverart for item
The Resource Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)

Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)

Label
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997
Title
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997
Statement of responsibility
William Knaus, Joanne Lynn
Contributor
Subject
Genre
Language
eng
Summary
The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision info... Cf.: http://dx.doi.org/10.3886/ICPSR02957
Member of
Additional physical form
Also available as downloadable files.
Cataloging source
ICPSR
Characteristic
combination
Date time place
Start: 1989; and end: 1997
Funding information
Robert Wood Johnson Foundation.
Geographic coverage
United States.
Government publication
unknown if item is government publication
http://library.link/vocab/relatedWorkOrContributorName
  • Knaus, William J
  • Lynn, Joanne
  • Inter-university Consortium for Political and Social Research
Series statement
ICPSR
Series volume
2957
http://library.link/vocab/subjectName
  • Attitudes toward death
  • Decision making
  • Dying
  • Informed consent
  • Intervention
  • Intervention strategies
  • Patient care
  • Right to die
  • Terminal care
  • Terminal illnesses
  • Treatment
Target audience
specialized
Label
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
Instantiates
Publication
Note
Title from ICPSR DDI metadata of 2004-10-30
Antecedent source
unknown
Color
mixed
Contents
Part 1: Physiologic Measurements Data, SUPPORT Phase I; Part 2: Patient Symptoms Data, SUPPORT Phase I; Part 3: Summary Data, SUPPORT Phase I; Part 4: Physiologic Measurements Data, SUPPORT Phase II; Part 5: Patient Symptoms Data, SUPPORT Phase II; Part 6: Summary Data, SUPPORT Phase II; Part 7: Physiologic Measurements Data, HELP; Part 8: Summary Data, HELP; Part 9: Physiology Data, SUPPORT Phases I and II and HELP; Part 10: Key Common Analytical Variables, SUPPORT Phases I and IIand HELP; Part 11: SAS Transport File for Parts 1, 2 and 3; Part 12: SAS Transport File for Parts 4, 5, and 6; Part 13: SAS Transport File for Parts 7 and 8; Part 14: SAS Transport File for Parts 9 and 10; Part 15: SAS Transport File for Input Control Datasets; Part 16: Summary and Codebook for All Parts; Part 17: Input Forms and Questionnaires for Phase I of SUPPORTStudy; Part 18: Input Forms and Questionnaires for Phase II of SUPPORTand HELP Studies
Control code
MIU01000000000000005047289
Dimensions
unknown
Edition
ICPSR version.
File format
multiple file formats
Governing access note
AVAILABLE. This study is freely available to ICPSR member institutions
Level of compression
unknown
Note
MU: Records downloaded from ICPSR site on Dec. 8, 2009.
Quality assurance targets
unknown
Reformatting quality
unknown
Specific material designation
remote
System control number
  • (MiAaI)ICPSR02957
  • (OCoLC)ocm61153177
  • (MiAaI)ICPSR02957
  • (OCoLC)ocm61153177
System details
Mode of access: Internet
Type of computer file
10 data files + machine-readable documentation (text and PDF)
Label
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997, William Knaus, Joanne Lynn, (electronic resource)
Publication
Note
Title from ICPSR DDI metadata of 2004-10-30
Antecedent source
unknown
Color
mixed
Contents
Part 1: Physiologic Measurements Data, SUPPORT Phase I; Part 2: Patient Symptoms Data, SUPPORT Phase I; Part 3: Summary Data, SUPPORT Phase I; Part 4: Physiologic Measurements Data, SUPPORT Phase II; Part 5: Patient Symptoms Data, SUPPORT Phase II; Part 6: Summary Data, SUPPORT Phase II; Part 7: Physiologic Measurements Data, HELP; Part 8: Summary Data, HELP; Part 9: Physiology Data, SUPPORT Phases I and II and HELP; Part 10: Key Common Analytical Variables, SUPPORT Phases I and IIand HELP; Part 11: SAS Transport File for Parts 1, 2 and 3; Part 12: SAS Transport File for Parts 4, 5, and 6; Part 13: SAS Transport File for Parts 7 and 8; Part 14: SAS Transport File for Parts 9 and 10; Part 15: SAS Transport File for Input Control Datasets; Part 16: Summary and Codebook for All Parts; Part 17: Input Forms and Questionnaires for Phase I of SUPPORTStudy; Part 18: Input Forms and Questionnaires for Phase II of SUPPORTand HELP Studies
Control code
MIU01000000000000005047289
Dimensions
unknown
Edition
ICPSR version.
File format
multiple file formats
Governing access note
AVAILABLE. This study is freely available to ICPSR member institutions
Level of compression
unknown
Note
MU: Records downloaded from ICPSR site on Dec. 8, 2009.
Quality assurance targets
unknown
Reformatting quality
unknown
Specific material designation
remote
System control number
  • (MiAaI)ICPSR02957
  • (OCoLC)ocm61153177
  • (MiAaI)ICPSR02957
  • (OCoLC)ocm61153177
System details
Mode of access: Internet
Type of computer file
10 data files + machine-readable documentation (text and PDF)

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