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The Resource The public shaping of medical research : patient associations, health movements and biomedicine, edited by Peter Wehling, Willy Viehöver, and Sophia Koenen

The public shaping of medical research : patient associations, health movements and biomedicine, edited by Peter Wehling, Willy Viehöver, and Sophia Koenen

Work
Publication
Extent
1 online resource (xviii, 290 pages)
Contents
  • Patient associations, health social movements and the public shaping of biomedical research: an introduction
  • Part I: Empirical cases and theoretical perspectives. A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt
  • Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann
  • Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris
  • The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa
  • Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski
  • Part II: Shifting contexts and new challenges. Autism, the Internet and medicalization / Peter Conrad and Catherine Tan
  • A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt
  • Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess
  • Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup
  • Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke
  • Part III: Democratizing biomedicine? The role of patient associations and health social movements. Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi
  • The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver
  • The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz
  • Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche
Isbn
9781317584476
Instance
Label
The public shaping of medical research : patient associations, health movements and biomedicine
Title
The public shaping of medical research
Title remainder
patient associations, health movements and biomedicine
Statement of responsibility
edited by Peter Wehling, Willy Viehöver, and Sophia Koenen
Title variation
Patient associations, health movements and biomedicine
Contributor
Editor
Subject
Language
eng
Member of
Cataloging source
N$T
Dewey number
610.724
Illustrations
illustrations
Index
index present
LC call number
R852
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
W 20.5
http://library.link/vocab/relatedWorkOrContributorDate
1954-
http://library.link/vocab/relatedWorkOrContributorName
  • Wehling, Peter
  • Viehöver, Willy
  • Koenen, Sophia
Series statement
Routledge studies in the sociology of health and illness
http://library.link/vocab/subjectName
  • Medicine
  • Biology
  • Public opinion
  • Patient advocacy
  • Patient participation
  • Biomedical Research
  • Public Opinion
  • Patient Advocacy
  • Patient Participation
  • HEALTH & FITNESS / Holism
  • HEALTH & FITNESS / Reference
  • MEDICAL / Alternative Medicine
  • MEDICAL / Atlases
  • MEDICAL / Essays
  • MEDICAL / Family & General Practice
  • MEDICAL / Holistic Medicine
  • MEDICAL / Osteopathy
  • Biology
  • Medicine
  • Patient advocacy
  • Patient participation
  • Public opinion
Label
The public shaping of medical research : patient associations, health movements and biomedicine, edited by Peter Wehling, Willy Viehöver, and Sophia Koenen
Instantiates
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier.
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent.
Contents
Patient associations, health social movements and the public shaping of biomedical research: an introduction -- Part I: Empirical cases and theoretical perspectives. A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Part II: Shifting contexts and new challenges. Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Part III: Democratizing biomedicine? The role of patient associations and health social movements. Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche
Control code
897376753
Extent
1 online resource (xviii, 290 pages)
Form of item
online
Isbn
9781317584476
Media category
computer
Media MARC source
rdamedia.
Media type code
  • c
Other physical details
illustrations.
Specific material designation
remote
System control number
(OCoLC)897376753
Label
The public shaping of medical research : patient associations, health movements and biomedicine, edited by Peter Wehling, Willy Viehöver, and Sophia Koenen
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier.
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent.
Contents
Patient associations, health social movements and the public shaping of biomedical research: an introduction -- Part I: Empirical cases and theoretical perspectives. A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt -- Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann -- Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris -- The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa -- Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski -- Part II: Shifting contexts and new challenges. Autism, the Internet and medicalization / Peter Conrad and Catherine Tan -- A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt -- Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess -- Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup -- Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke -- Part III: Democratizing biomedicine? The role of patient associations and health social movements. Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi -- The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver -- The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz -- Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche
Control code
897376753
Extent
1 online resource (xviii, 290 pages)
Form of item
online
Isbn
9781317584476
Media category
computer
Media MARC source
rdamedia.
Media type code
  • c
Other physical details
illustrations.
Specific material designation
remote
System control number
(OCoLC)897376753

Subject

Member of

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      38.939544 -92.328377

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